I finally found a link that explains to me everything it means to have VCF and 22q11 deletion disorder. If you know our daughter Vivian this will make it a lot clearer what she has. When your missing part of a chromosome and thus your DNA and thus the blueprint for your body, those things it was going to help build can grow abnormally. So far Vivi has had a very mild case of 22q11 with the Tetrology of Fallot heart defect being the only major issue.
http://en.wikibooks.org/wiki/Handbook_of_Genetic_Counseling/22q11_Deletion_Syndrome
or more generally
http://en.wikibooks.org/wiki/Handbook_of_Genetic_Counseling/Velo-Cardio-Facial_Syndrome_%28VCF%29#What_is_VCF.3F
